By: Megan Palera
A Lincoln military family is in a battle with a rare disease that attacks the nervous system.
The King family is filled with giggles and smiles. An outsider would never know the pain and suffering the entire family has endured this last year.
"I would have to crawl to get anywhere. I could not walk. I could not see or breathe very well," Megan King said.
King suffers from POTS, a rare disorder that attacks the autonomic nervous system. It began during her pregnancy with now 9-month old Perry, and only got worse. When Megan doesn't use a walker to get around her husband carries her. Mike is a military veteran who also holds down the fort at home on top of working full-time and going to school.
"It's been a year and few months now and it's so hard to do it everyday and not know the answer. Not even know why you're going through what you're going through," Mike King said.
The King's only hope now is a treatment center in Texas. The center guarantees just two weeks of treatment can bring an 80-100% recovery. But the trip is expensive, costing around $15,000 and it's not covered by insurance. The King's plan to sell a Harley and their second car to pay for it. And if needed, Megan's engagement ring.
"I kind of looked at my hand and I was like, I don't need this to show that I love him and it's always replaceable," King said.
King is scheduled for treatment in early July and the family is planning to make the trip one way or another, their faith guiding them on the road to recovery.
If you would like to help the family, a fund is set up at Wells Fargo Bank. Donations can be made under "Megan's Road to Recovery." You can also donate online at www.youcaring.com.
*Here is some more information about POTS:
Postural Orthostatic Tachycardia (POTS) is a syndrome. As such, there is a collection of symptoms that distinguish it. The symptoms are widespread because the autonomic nervous system plays an extensive role in regulating functions throughout the body. Many of these symptoms, such as low blood pressure,* may present only after prolonged standing. Symptoms will vary from person to person. The following is a list of symptoms reported by patients. When possible, we have included the percentage of patients that research reports have experienced a given symptom.
Symptoms presumed to be related to autonomic overactivity include the following:**
Sudomotor symptoms include the following:**
Symptoms that may reflect dysautonomia:**
Generalized Complaint symptoms:**
Other symptoms reported in research that are not categorized above include:
The above are symptoms reported by POTS researchers. Other symptoms sometimes reported by POTS patients include:
POTS symptoms can vary from day to day. They tend to multiply and become exaggerated upon upright posture. Blood flow and blood pressure regulation are also abnormal while supine or sitting, but these abnormalities may not be as apparent and may require orthostatic stress to become evident (Stewart & Erickson, 2002). Some patients do report symptoms occurring while sitting or lying down. Heat, exercise and eating can exacerbate symptoms. Women sometimes report an increase in symptoms around menstruation.