College hosts carnival for 11-year-old boy - News, Weather and Sports for Lincoln, NE; KLKNTV.com

College hosts carnival for 11-year-old boy

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By: Hannah Paczkowski
hpaczkowski@klkntv.com

Many describe Dylan Golden as a fun-loving 11-year-old kid, but there's one thing Dylan's been dealing with his entire life.

A condition called Charge Syndrome.

 "It is a genetic disorder and it happens in about 9 in 10,000 people worldwide, every letter for charge stands for something different," his mother, Sharah Cossey, said.

Which means the syndrome has nearly 250 characteristics.

Some include a cleft of the eye or abnormalities in the retina, which can cause major problems in other areas of the body.

"He, himself, has had 9 surgeries since the first 3 months of his life," Sharah said.

Sharah shared her son's story with her school. That's when Joseph's College of Cosmetology decided to host this fundraiser for Dylan.

 "The student here, Sharah, she's wonderful. She's got so many things going on every day and she just strives and strives and wants nothing but the best, so that's awesome," organizer Morgan Ballard said.

Dylan is forced to use sign language to communicate, and though the life-long condition has been a struggle for Dylan and Sharah, she says having him by her side is a blessing.

"It has been very hard, but also very enjoyable. He has made me who I am today, made me think the way I do, I have no idea what I would do without him," she said.

To donate to the Charge Syndrome Foundation, visit www.chargesyndrome.org and click "Charge for Dylan".

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