18th annual Concerned Nebraskans for Cystic Fibrosis fundraiser
The 18th annual Concerned Nebraskans for Cystic Fibrosis fundraiser was held at the Pla Mor Ballroom on West “O” street. It helps raise money for families going through the rare lung condition.
This community of locals, sponsors, talent and organizers came together for support in the newest fight against cystic fibrosis.
Cystic fibrosis is a condition where fluid clogs the lungs and impairs regular breathing.
Jeff Markey’s son was diagnosed with Cystic fibrosis at birth and he says this Nebraska community is what helped make his situation better, knowing that his family was not alone.
“These fundraisers are so important to make sure that people that qualify for that drug can get the financial help to be on it, because we want to make sure that people can feel their best and if you can take someone who’s breathing at a 50 percent level and make them 75, that’s huge, that’s a great thing we can do to help them so they don’t feel like they have to do this by themselves,” Concerned Nebraskans for Cystic Fibrosis, Jeff Markey said.
The newest treatment, Trikafta, is making headway, however, it is expensive and it is fundraisers like this that make the treatment available to those who need it.
The fundraising event had food, a silent auction and live music, all accompanied by an active crowd at Lincoln’s Pla Mor ballroom.
It’s fundraisers like this that also help bring forth the bold and heartwarming stories like Friday’s Ed Gagner story possible. Here is the link to the story.
Here is the link to the Concerned Nebraskans for Cystic Fibrosis website.