Seward community rallies around infant with rare seizure disorder

At about a dozen businesses around Seward, you'll find plastic jars. They aren't there for tips, instead, to help a little warrior.
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SEWARD, Neb. (KLKN) –At about a dozen businesses around Seward, you’ll find plastic jars. They aren’t there for tips, instead, to help a little warrior.

10-month-old Swade is a happy, smiley baby but her also deals with infantile spasms, a rare seizure disorder.

“We happened to catch some recordings of kind of some weird movements that he was doing. We went to our local pediatrician and then he was like ‘I don’t know what this is. It looks weird to me. We need to get you somewhere else,” Shelby Miller, Swade’s mom, said.

It’s been a long journey to actually have Swade diagnosed. Once doctors were finally able to figure it out, that’s when medications and therapy started. Of course with that, comes some hefty medical bills.

“When we were having so many issues with insurance, they just simply didn’t want to cover anything and everything. We received blow-back on just about every medication that we needed to be put on,” Miller said.

That’s when Shelby’s friend and former co–worker stepped in to help.

“Well, it first started, when Shelby told me what was going on. My first thing I asked her was, she was okay with me putting donation jars up,” Jensen Schulz said.

Jensen went around town to the small businesses in Seward and asked if she could set up jars with Swade’s story so people could donate.

Friends and strangers alike have helped the family one donation at a time. From a couple coins, to bigger contributions, Shelby says with the traveling to appointments, the tests and medications, it all adds up.

The family does not have a Go Fund Me but if you are interested in donating, you can email jensen_schulz@yahoo.com or through Swade’s Venmo, Swade-Root-56203

Categories: Nebraska News, News, Seward